Undiagnosed Chronic Illnesses

This person doesn't need medical advice from HN. What he needs is to keep seeing specialist doctors until he can find one that can diagnose him correctlyHe's been doing that for 18 years, it's natural to try something different.

My experience with the medical community is exactly the same, it's frustrating. If it's difficult to diagnose and doesn't have clear visible symptoms, almost all doctors immediately say it's a psychological issue. If you show them any research and ideas what could be done they immediately dismiss it, because you are not a medical professional.Everyone that never had an issue like that has a really high image of the medical profession, so when you tell them about your probl

If someone comes to you with a whole lot of pain and loss of function, ignoring it and thinking it's just in their head/they just need to toughen up and get over it because nothing showed up in thier blood reports is something that is almost ubiquitous in the medical field today. I have a connective tissue disorder that was ignored for years because nothing showed up in my blood report and I looked healthy. There is a reason why people are dysfunctional and in pain and once I got a dia

My wife is a doctor, and prevailing opinion in their community that Lyme is a blanket statement for many unexplainable symptoms like you describe.There is this notion (which i also had in the past due to not knowing much about medicine) that doctors are almost all-knowing and all-powerful in treatments. Reality is unfortunately still very far from it. Imagine constant stream of people who have chronic untreatable ailments, are on various cocktails of medicines, often have some psychiatric iss

a friend of mine spiraled into years of undiagnosed anxiety, depression and fatigue and was told by many doctors it was all in her head. a few years later she was diagnosed with lyme disease, got treatment and now has a new lease on life.

I'm going to find a doctor who will admit a real disease exists and actually consider it as a possibility. Many don't, and it's irresponsible. Report irresponsible doctors. They aren't hurting for cash.

You might also want to look into ME/CFS. I'm very sorry to hear about this, because I had an analogous experience for years and know how hopeless it feels to try to figure out what the issue is (while your cognitive abilities / stamina are limited by brain fog), fail over and over, and in the meanwhile others cannot understand and don't believe you.Feel free to email me if you want to chat.

Went to doctors dozens of times with severe but vague symptoms. Was admonished repeatedly for doing my own research. All the doctors get saying it was anxiety, and that I was simply a hypochondriac. After years of this found out I had 3 fairly uncommon conditions that mixed to produce crazy issues. Proper treatment resolved my issues. I’ve met many others who have had similar problems.Consumers should always be allowed to do their own research.

Stronger: Is there a reason you haven't tried to get a proper diagnosis from a medical professional, but you're accepting advice from random people on the internet? (It is HN, but still...)

Same happened to me. After visiting many doctors, the last one told me he still has no idea what could cause my symptoms. After that, I uploaded all my test results to ChatGPT. Got the diagnosis right away. Asked it what test I could do to confirm it. Went back to the doctor. Did the test. Confirmed the diagnosis and started treatment.