23andMe Privacy Concerns

The cluster focuses on privacy risks and data handling practices of 23andMe's genetic testing services, including concerns about data sharing with third parties, potential leaks, insurance implications, and requests for more privacy-focused alternatives.

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Keywords

GSK CCPA paulstamatiou.com www.wipo PGS yourdigitalrights.org HN goo.gl foundmyfitness.com labcorp.com dna genetic data fda privacy singapore health service diseases 23

Sample Comments

hw89y24y89 Apr 27, 2018 View on HN

Oh I dunno, maybe read it:https://www.23andme.com/about/privacy/

zamadatix Jan 23, 2020 View on HN

Knowing your genetic risks would be useful, it's just a shame their share the data with 3rd parties.

We do not do this at 23andMe: https://www.23andme.com/transparency-report/

_ink_ Oct 31, 2023 View on HN

I would really like to get my DNA analised. Mostly to see what deseases I might be prone to get. Obviously 23andMe cannot be trusted. Is there a more privacy focused provider? Ideally who just gives me the result and then deletes my data?

_rs Feb 27, 2023 View on HN

Are there any services like 23andme that are more strict when it comes to data privacy or that allow me complete ownership of the data? I would love this type of analysis even at a higher cost but I am scared of what might happen in the future to this data on me and children

DKnoll Nov 24, 2017 View on HN

What are the privacy concerns with 23AndMe? Curious as I'm a user.

pstuart Aug 10, 2020 View on HN

I have a 23andMe test waiting to be used, but "privacy fears" have kept me from using it. Found My Fitness (Dr. Rhonda Patrick) offers tests that ostensibly help individuals shape their health strategies: https://www.foundmyfitness.com/geneticsSo, Ask HN: is my paranoia unfounded? Is my DNA already catalogued and the cat is out of the bag? Fortunately I've committed no crimes of s

Given the nature of the service, you should probably treat it as inherently pseudonymous. You're handing over irrevocable genetic data which will link you to relatives. Whatever their data protection assurances are, you have to imagine the worst case scenario - massive data leakage. And if this happens then you will in all likelihood be identifiable.

wslh Sep 18, 2024 View on HN

What is a good alternative to 23andMe that retain confidentiality, and is it enough to use/play with Python packages for genetics

throwaway1zz Jul 25, 2018 View on HN

Primary concern is declining insurance coverage, unless 23 and me allows for a anonymous no name test?