Medical Data Privacy
The cluster focuses on concerns about the privacy and confidentiality of health/medical data, frequently referencing HIPAA regulations, doctor-patient privilege, and risks of misuse by insurers, governments, or third parties like tech companies.
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This is actually not possible. There is a set of laws called the "Health Insurance Portability and Accountability Act" or HIPAA. This prohibits us and anyone else to misuse your data and share them without your consent.
Isn't health data private in the USA?
I thought medical data was one of the things we had privacy laws on.
This is happening with health insurance companies in Singapore. It sets a worrying precedent where patient/doctor confidentiality becomes obsolete. I'm not against my health data being collected anonymously for research purposes but I sure don't want the researcher to be my health insurance company.
You don't. If you're not my doctor, you don't get access. How do I know you're not putting the data on a misconfigured ElasticSearch instance that's accessible via public internet? Why should I take that chance?
What if you don't want other people viewing your medical data
Just for the last part, for everything else you can use duckduckgo (or qwant).Anyway it is not such a hypotetical scenario, nazis were really killing the disabled persons based on their medical record (yes, qwant or duckduckgo for it).Yes, it is a bad idea that doctors keep those data. If insurance companies get those information (and my dentist said he was already aproached by some company to sell dental records, I wouldnt be surprised if this is a common practice in states) you will have
how is that compatible with doctor patient confidentiality?
Yes as long as it can guarantee that it won't be abused by entities like insurance companies etc to track things and make it worse for an absolute horrendous healthcare system at least in the USA. If the info remains only between the patient and may be their doc, then yes.
Regulations exist around handling this kind of data. As long as you have privacy of medical decisions, the government or third parties shouldn't be able to access them.